{"alias":"blogEntry","byline":"Nicola Hilliard, Creative Content Producer","standfirst":"Eddie, who\u0027s in Squirrels, lives with a complex medical condition. It\u0027s called Neurofibromatosis Type 1 and it\u0027s caused Eddie to have hyper-mobility, severe joints pain, dyspraxia, a speech disorder and neuro-developmental difficulties.","content":{"layouts":[{"type":"singleColumn","areas":[{"items":[{"gridType":"RichTextBlock","content":"\u003Cp\u003EEddie\u2019s supported by a charity called Childhood Tumour Trust.\u00A0Every year, the charity marks \u2018World Neurofibromatosis Awareness Day\u2019 on 17 May.\u003C/p\u003E\n\u003Cp\u003EIn 2022, the charity challenged everyone to complete 5km to raise money and awareness, either by walking, running, scooting or riding.\u003C/p\u003E\n\u003Cp\u003EEddie excitedly shared the challenge with his friends at Squirrels, so they set a goal to cover 70km between the group. They smashed that target!\u003C/p\u003E\n\u003Cp\u003EJust six members of the Squirrels Drey covered a fantastic 76km between them, with Eddie completing just over 18km of this himself.\u003C/p\u003E\n\u003Cp\u003ETogether, they all raised a brilliant \u00A3110 for the charity. We caught up with Eddie and his mum, Lauren, to find out more.\u003C/p\u003E","gtmId":"","gtmClass":""},{"gridType":"gridImageBlock","gtmId":"gtmId","gtmClass":"gtmClass","image":"/media/19811/eddie-on-his-scooter-on-the-pavement.png","width":1080,"height":1920,"altText":"Eddie on his Scooter on the pavement ","caption":"","link":null},{"gridType":"RichTextBlock","content":"\u003Ch3\u003E\u003Cstrong\u003EWhat do you enjoy most about Squirrels? \u003C/strong\u003E\u003C/h3\u003E\n\u003Cp\u003E\u2018Playdough with my friends,\u2019 Eddie said. His Squirrels Drey start every session playing with playdough and Duplo while waiting for everyone to arrive.\u003C/p\u003E\n\u003Cp\u003ELauren, Eddie\u2019s mum, adds, \u2018It\u2019s always a big hit with them all, and it helps to break the ice a little when the kids are feeling a bit nervous or reluctant, as four-year-olds sometimes do.\u2019\u003C/p\u003E\n\u003Ch3\u003E\u003Cstrong\u003EWhat did you really enjoy about your challenge?\u003C/strong\u003E\u003C/h3\u003E\n\u003Cp\u003E\u2018Going really, really fast.\u2019 Eddie says, with his mum adding \u2018it\u0027s always more fun to do it as a team\u2019.\u003C/p\u003E\n\u003Ch3\u003E\u003Cstrong\u003EDid you ever want to give up?\u003C/strong\u003E\u003C/h3\u003E\n\u003Cp\u003EEddie\u2019s mum, Lauren, told us there were difficulties. Eddie has low stamina and his legs often cause him pain, either when being active or later on that day. The Squirrels spread the challenge over a week. However, on day three of the challenge, Eddie came down with Scarlet Fever. He was very poorly, but he didn\u2019t want to stop taking part in the challenge. Eddie still begged to go out on his scooter, so Eddie and Lauren did, but just along the street and back.\u003C/p\u003E\n\u003Ch3\u003E\u003Cstrong\u003EWhat made you keep going even when it was hard?\u003C/strong\u003E\u003C/h3\u003E\n\u003Cp\u003E\u2018I like my scooter. It goes really fast.\u2019\u00A0Eddie smiled.\u003C/p\u003E","gtmId":"","gtmClass":""},{"type":"Promo","cta":"","body":"\u003Cp\u003EA huge well-done to you, Eddie, and to all your friends in Squirrels! We hope you\u2019ve been back on your Scooter since, too.\u003C/p\u003E","link":null,"colour":"#490499","title":"","image":null,"imageFocus":"","imageId":0,"imageKey":"00000000-0000-0000-0000-000000000000","imageCrop":"","gridType":"card","gtmId":"","gtmClass":""}]}],"config":null}]},"searchDescription":null,"pageType":null,"location":null,"versionDate":"13 February 2023","reviewDate":null,"furtherReading":[{"caption":"","title":"Meet our 2022 Unsung Heroes","url":"https://www.scouts.org.uk/news/2022/september/bear-congratulates-his-unsung-heroes-at-birmingham-awards-day/","newWindow":true},{"caption":"","title":"Nominate Unsung Heroes for 2023","url":"https://www.scouts.org.uk/news/2023/january/help-us-find-the-chief-scout-s-unsung-heroes-2023/","newWindow":true},{"caption":"","title":"Join Scouts","url":"https://www.scouts.org.uk/groups/","newWindow":true}],"relatedLinks":[{"caption":"","title":"Fundraising support","url":"https://www.scouts.org.uk/volunteers/running-things-locally/grants-and-funds-for-your-local-group/fundraising-support/","newWindow":true},{"caption":"","title":"Try Scootering with Scouts","url":"https://www.scouts.org.uk/activities/get-your-scoot-on/","newWindow":true},{"caption":"","title":"Cubs Skater badge","url":"https://www.scouts.org.uk/cubs/activity-badges/skater/","newWindow":true}],"id":48740,"nodeName":"Meet Eddie, the super scooting Squirrel","title":"Meet Eddie, the super scooting Squirrel","type":"blogEntry","image":{"url":"/media/19811/eddie-on-his-scooter-on-the-pavement.png?cc=0,0.02625,0,0.65734375\u0026width=800\u0026height=450\u0026v=1dab80ae29bdc60","caption":"Eddie On His Scooter On The Pavement","type":"png","size":3059402,"width":1080,"height":1920,"altText":"Eddie on his Scooter on the pavement "},"assets":null,"headerOptions":{"headerTitle":"Meet Eddie, the super scooting Squirrel","headerSubTitle":null,"headerCta":null,"headerCtaText":null,"headerCtaLink":null,"headerBackgroundColour":null,"showSEOImage":false,"headerBackgroundImage":null,"quickLinks":null},"subHeader":"Eddie and his Squirrels Drey scooted 76km for charity, raising awareness and funds for a charity that support Eddie.","browserTitle":null,"silktide":"eyJjbXMiOiJVbWJyYWNvIiwiZWRpdG9yVXJsIjoiaHR0cHM6Ly9wcm9kLWNtcy5zY291dHMub3JnLnVrLy91bWJyYWNvIy9jb250ZW50L2NvbnRlbnQvZWRpdC80ODc0MCJ9","canonicalUrl":"https://www.scouts.org.uk/news/2023/february/meet-eddie-the-super-scooting-squirrel/"}